Sense TouchBase South East stands at the top of a hill, tucked away from the busy high street in Barnet. For over ten years, I have been commuting to this now retired battery factory to support people who are deafblind or have complex disabilities, and although it has existed for a quarter of a century, every day feels new. The centre was initially funded by a gift in a Will from a generous Sense supporter. TouchBase South East has been a gift to so many families, including my own.
My brother George is a year younger than me. I think most people can tell that we are brothers straight away but George is slightly different to me. He has a number of health conditions that have caused learning disabilities, visual, hearing and physical impairments, and epilepsy. With all of this, George is understandably very hesitant when meeting new people and going to new places. He is more than happy sitting on the sofa with our mum watching ‘Only Fools and Horses’.
Every June, for Deafblind Awareness Week, communities join forces up and down the country to put on a Sense Walk with the idea of bringing everyone together in their local communities. Sense Walks helps us spread the word of the work we do and the support we provide to people in local communities. Filled with bright colours, many balloons, face painting and much more, people came together to spread awareness of Sense.
The Trail magazine competition offered free entry to the Ridgewalk and 3 guest blogs on its website. As a fledgling writer trying to expand horizons I was tempted. There was the minor issue of 52 miles to cover, but hey I needed a challenge. And the sponsorship target seemed achievable.
wasn’t the most commendable motivation and somewhat selfish. It got me signed
up though – training would need to be well advanced by the time the
winner was announced. Which proved good judgement – I didn’t win but was
committed now. No backing out.
Fast forward two months, the first 30-mile training walk under the belt, sponsorship in need of a boost so time to hit social media. Out of the blue came £100 from a business colleague. Turns out he used to be a Sense trustee; his daughter was profoundly disabled from birth and received a lot of help from the charity. Thoughts went back to when we first met, two days after his daughter died, things still raw. Forget business, we just talked. The Ridgewalk was suddenly taking on meaning. Which felt kind of nice.
🚴 23-year-old Beth Jones was inspired to take part in the Prudential Ride London-Surrey 100 to raise money for Sense, after seeing first-hand the difference we make to the people we support, including to her brother Callum.
Beth’s brother Callum has epilepsy and severe learning difficulties, and attends our Sense day centre in Streatley, Bedfordshire. We support Callum by removing barriers of communication, which gives him the opportunity to connect and experience the world!
“Despite the challenges that Callum faces, he has always been happy, curious and engaged with all the world has to offer.” – Beth
a recent report the Government was yet again criticised for failing to find
a long term funding solution for the social care system. As we head towards the
summer, and a 6 week break for Parliament, there are a lot of ideas being
discussed. One of the top proposals for solving the social care crisis is Free
Personal Care, but what does it mean, and how would it affect the people Sense
looking for a new job? Or considering a
career change? Sense has a wonderful
array of career and volunteering opportunities available, and will be appearing
at a series of Job Fairs across the country this year to promote them.
“Alone we can do so little; together we can do so much.” Helen Keller.
Many people are familiar with ‘The Miracle Worker’ and the story of Helen Keller. She has appeared in Time Magazine as one of the 100 most influential figures of the 20th century and during her life, rubbed shoulders with the political and literary elite. However, this was just the tip of the iceberg. At Sense, we see her as a communicator, an educator, an activist and a beacon of kindness. From the moment she understood the word ‘water’, she spent her life challenging people’s perceptions of what it means to be deafblind.Today we are celebrating Helen Keller Day. She made it her life’s work to ensure that no one was left out of life and her achievements have inspired people all over the world. We have put together some of our favourite facts about Keller.
Friends, family, colleagues and celebrities are now all just a click away. Social media and the internet have shrunk the world while growing our circle of contacts. Socialising is a necessary need for humans, and technology has changed the landscape in which it occurs. However, not everyone has access to this broad new horizon and keeping friendships are harder than ever. Loneliness Awareness Week runs from 17 to 21 June and aims to highlight that loneliness is something that affects us all at some point in our lives.
Alison and Kanhai have been friends for well over a decade now, always living relatively close by. Both are deafblind with learning disabilities and both communicate using British Sign Language (BSL). This shared language made their bond stronger as, regardless of what was happening in each other’s lives, they could always talk to each other. They met regularly, ate together, laughed together and on more than one occasion went on holiday together.
We’re proud to be one of the seven organisations taking part
in this week’s Carers Week (10-16
June) which recognises the 8.8 million carers who provide invaluable support to
their loved ones, day-in and day-out. We know from our daily work with carers,
as well as the research from our When I’m Gone campaign,
that being a carer for a disabled loved one brings with it a number of triumphs
and joys but also a number of challenges.
Jai is incredibly cheeky. He sees no evil, hears no evil and he is my son.
People do look at his dark glasses and hearing aids. They do ask what it is like to have a child with a degenerative disease; but I always say that Jai is Jai. He loves football and the police; too much at times to the point it can sometimes get him into trouble.
yourselves in my shoes for a moment; you receive a phone call from the school
that your child with disabilities attends. Immediately your heart is in your
throat and you fear for the worst. The drive to the headmistress’s office is
the longest of your life and obviously every light turns red. As you push the
heavy door, you are greeted with your son’s smiling face and the stern headmistress.
Then you find out why you have been called; your son’s love of the police has
gone too far and he has tried to arrest another student.