With approximately 1.7 million disabled adults being cared for by family and friends across the UK it is important that we recognise the invaluable contribution that these carers make to society.
That’s one of the reasons Sense has partnered this year with Carers Week – to recognise, celebrate and champion the amazing work that carers do, and call for more support for carers and their disabled loved ones. Particularly when it comes to thinking about and planning for the future.
The Sense Awards are back for their 16th
year and now is your chance to nominate your Sense Superstar. The Awards
recognise the outstanding achievements of people with complex disabilities, as
well as those who support them.
From celebrating carers that have provided
outstanding support to their loved ones, to incredible fundraisers, or
companies that have developed a new innovative product helping those with
complex disabilities – there is a category for everyone and everything.
Late last year, I was really excited to see a press release from Heathrow talking about an app they were trialling to enable visually impaired people to be able to use the airport more independently.
Like a lot of
people, I find flying really stressful. I’m blind and hearing impaired and the
whole environment (from security onwards) is really tricky to navigate around,
plus it’s really noisy so communication can be challenging. All this can often
mean that the process of checking in can take longer, thus leaving less time
for important activities such as spending money in duty free and scoping out
the nearest bar! Even though you can
book support through your airline, you are still reliant on this being put in
place and working without a hitch, so anything that can give people more
independence is to be welcomed.
Chris Punt is a good example of someone who felt very isolated and depressed when much of her remaining sight was lost. It was a very tough time for her, but with the support of her Sense Communicator Guide she has built a new life for herself.
Some people can’t wait to retire from work, others can find this a difficult transition – especially if this has been forced upon them.
Chris had always loved her work, and the people it brought her
into contact with, but suddenly this was snatched away from her. “I spent my
entire life supporting children and adults with learning disabilities and
mental health difficulties,” she explains. “I did so many things. I had a
football team with Watford Football Club; we did a bereavement group, we did
music, art and craft. I just loved it so much.”
On Monday 29 April, the Sense Get Out
There (GOT) group, a community-based short break service that supports young
disabled people, celebrated its 10-year anniversary. To mark the occasion, HRH
The Princess Royal visited the group and was presented with a book of stories
written by disabled people marking their growth in independence.
Each person’s story reveals how much their life has been touched by the Sense GOT group. For some, it is the opportunity to experience new things and visit new places that keeps them coming back. For others, it is simply the chance to make friends. One thing is for certain, everyone has a story to tell.
There’s no doubt about it. Social media has changed a lot
about the way we interact with each other, as well as go about our daily life.
Whilst it is often used in many positive ways, sadly social media seems to be
fuelling the abuse of many groups in society, including disabled people, from
people who hide behind screens, often out of the reach of police, with social media
giants being slow to act to tackle this behaviour.
For a long time it seemed that Tony and his mother had simply been forgotten, left without support to struggle on alone. Tony had always been keen to try new things and build up his skills but there were few opportunities to do this.
Then a resourceful social worker found out about Sense’s TouchBase South East Centre and a new journey began for them both.
“For as long as I live, I will never forget that day” says Janet. “Tony walked in the door and said to me:
“You’ll never guess what I’ve done today Mum – I’ve been rock climbing.”
When Tony was young, and could see better, he used to love climbing trees with his brother,” she says, “but I just couldn’t imagine him ever doing anything like that again.”
James Morris – Occupational Therapy student at York St John.
Why did you volunteer on the holiday?
First and foremost, I wanted to be able to do some good and really make a difference with my spare time. I had a long summer from university and wanted to make the most of it! It was the perfect opportunity to do something incredibly beneficial for the holiday makers and extremely rewarding for myself! On top of all this, it was a really great experience and a chance to really develop my skills that will be very useful going forward in my career.
My name is Kerri and I work in fashion merchandising for a well-known
Why did you volunteer on the holiday?
For years I’d been thinking about learning British Sign Language but I wanted to make sure I could use my new skills for the benefit of other people. So, before I started BSL lessons I researched different deaf charities and found Sense. I loved the idea that they are creating holidays for young people and adults with disabilities, that enable them to take part in different activities and experiences that many would assume they couldn’t.
On Sunday 28 April, #TeamSense runners will be taking on the Virgin Money London Marathon, to raise money for people with complex disabilities, including those who are deafblind. Ten of our incredible runners share their story.
Paul is running for his nephew who is supported by Sense
“Due to complications at birth, Jaxon has a number of eye conditions. My brother and sister-in-law were put in touch with Sense where a family support worker, was able to develop an amazing relationship with him, encouraging him to wear his glasses, play and develop his attention span.
He has come leaps and bounds since starting and met some great friends. I feel proud to be running for Sense and very grateful for what they do to support children and adults with complex disabilities.”