Book review: He Is Not me: a Deaf Childhood, a Hearing Adulthood

Steven Morris

Steven Morris

I was delighted when I was asked to review Stuart McNaughton’s account of his life both before and after receiving a cochlear implant.

As a recent recipient of a cochlear implant myself, I was fascinated to read of someone else’s experience with this potentially life-changing technology. At this point, I should probably briefly outline what a cochlear implant actually is. A cochlear implant is a surgically implanted electronic device that provides a sense of sound to a person who is profoundly deaf or severely hard of hearing.

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Stop blaming blindness

Rehabilitation services enable blind, and deafblind, people to develop skills to increase independence. They include, for example, training in orientation and mobility, cooking and other household tasks, reading braille, and using specialist equipment and software. They reduce, sometimes eliminate, the need for long term support.

A recent report published by RNIB revealed a worrying drop in the number of visually impaired people receiving rehabilitation services. It also showed that, when such services are provided, they are often restricted to six weeks, which is woefully inadequate to learn the complex skills, and the confidence needed.

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Product review: Sonido personal listener

Ian Capon holding his Sonido personal listenerIan Capon

Personal listeners are portable listening devices that can help you to hear with or without hearing aids.

The Sonido personal listener is one such device available from Action On Hearing Loss. This is the description of it on their website:

“The Sonido portable amplifier is designed to help you hear conversations and other sounds (like the TV) more clearly. Simply point the Sonido in the direction you want to listen and it will amplify the sound you want to hear and reduce the background noise from everywhere else.

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The impact of 'bedroom tax' on deafblind people

Kari Gerstheimer, Head of Legal Support ServicesKari Gerstheimer

It has not been an easy year for disabled people. Local authorities are squeezing social care support to the bare bone, living costs are spiraling and many disabled people are worried about the changes in welfare benefit from Disability Living Allowance (DLA) to Personal Independence Payment (PIP).

The ‘bedroom tax’, a term routinely used to describe the governments ‘under occupancy charge’ or ‘spare room subsidy’, is a nationwide change in the way housing benefit entitlement is calculated. If tenants are assessed as having a ‘spare room’ they will see a reduction in their overall housing benefit of 14 per cent, or 25 per cent if the tenant has two ‘spare rooms’.

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In praise of the Braille display

by Steven

Not being able to see means that, for example, I rely on audio output to access my computer via something called a screenreader, (I use JAWS by Freedom Scientific) that literally does what it says on the tin and tells me what is on screen. Using the keyboard and various shortcut keystrokes, I can easily move around the screen, browse the internet, read emails etc.

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Who will join me on my Mission to Mars?

Katie Vecina, Sense Activist

Once upon a time, my sole ambition was to become an astronaut. Fuelled by an overdose of scifi books and films beamed at me by my older brother, I engineered my spaceship out of discarded kitchen worktop and spare car parts; it even had its own hydroponics system. For most of the summer holiday, I travelled in it, across the universe, in a space oddity that only a nerdy six year old with an overactive imagination could dream up.

When my brother gleefully tried to shatter my dreams by informing me that I could never be an astronaut, I zapped him with my super-powered laser, which consisted of a washing up liquid bottle filled with cold water.  My obsession with becoming an astronaut was short lived, which is just as well: my brother was right, my impairments did mean I could never become one. Or, so I thought, until I came across this article in the Guardian about the likely psychological impacts of the Mars One mission, concluded that my life is remarkably like that of an astronaut and that, therefore, deafblind people would make perfect astronauts.

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There is nothing like disappearing into a book….or a Kindle!

Molly Watt
Molly with her Kindle and guide dog UnisI have always simply wanted to be a part of society and when I began losing my sight at twelve, having been such a visual person, like deaf people are, I found the isolation of not being able to follow simple text devastating.

I am very glad I have grown up in an age of growing technology and that I have been able to benefit from it. Probably the only good thing about being diagnosed with Usher syndrome while at school was that I was young enough and willing enough to learn how to use the technology made available to me.

Looking back, the first technology that worked for me were analogue hearing aids at 18 months followed by a radio aid with lots of wires when I went to nursery at age three. The hearing aids changed to digital when I was eight, and after a little getting used to I could hear the difference. I remember leaving audiology with my mum and hearing two sounds that made me jump, one was the sound of my zip as I did my anorak up and the second the rustle of my hair across my anorak. I’d never heard either before. It was after this I heard bird song for the first time – I feel lucky to have this as I know my profoundly deaf friends will never hear these things.

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The excitement of taking rubbish out to the bin….

One thing I am particularly pleased to see in the Care Bill is that local authorities will have to promote wellbeing in relation to a number of factors, including suitability of living accommodation. Having lived for several years in a flat that was inaccessible, I know what a difference suitable housing can make to wellbeing.

My old flat was almost perfect for me when I first moved there but, within a couple of years of moving in, I became a wheelchair user, making the flat totally unsuitable.

It was on the first floor. To get in or out, I had to drag myself up and down outdoor stairs on my bottom, in full view of several neighbours. Bye bye dignity.

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Victory, at what cost?

Pyrrhus, Sense Activist

Having ranted over the award of Employment Support Allowance (ESA) only being awarded for six months to ‘M’ on the  Sense oldblog, for whom I am a benefits appointee, let me tell you the following tales of welfare reform concerning council tax benefit and housing benefit.

M’s local authority, which had previously not charged council tax, decided that with few exceptions, most people would pay a proportion.  There was an “exemption from” category which M would be eligible for, but required a claim to be made…

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