I’m fighting for the future of my disabled daughter’s care

A smiling girl in an accessible buggy with a smiling woman and a smiling boy and girl who are wearing cycling helmets

When I first took my disabled daughter to Nascot Lawn Respite Centre – the only NHS overnight and daycare centre in Hertfordshire – I never imagined it would become one of the most important places in our lives. So when the service was threatened by closure last year, I didn’t hesitate to lead the legal challenge to reverse the decision.

Beating the odds and winning two judicial reviews meant the parents from Nascot Lawn raised the importance of short breaks and social care funding for all disabled children to a national level. But now, with only three staff members left, the gem of Hertfordshire is on the brink of extinction and my daughter’s future uncertain.

Continue reading “I’m fighting for the future of my disabled daughter’s care”

Loneliness can be a huge challenge when you’re a disabled young person transitioning to adulthood

A woman with her guide dog stands on the terraces at the house of lords, parliament

My name’s Ellen Watson. I’m 22 years old. I’m a student at the University of Sheffield. I recently attended parliament where I spoke about loneliness and disability. I shared my experience of being deaf and losing my sight, and the effect it has on young disabled people transitioning from childhood to adulthood.

Continue reading “Loneliness can be a huge challenge when you’re a disabled young person transitioning to adulthood”

As a visually impaired school pupil, Sense College was the perfect place to get my work experience

A smiling young man holding a cane stands next to a sign that says "Sense College, Sense Centre, Peterborough"

I have a severe visual impairment and came to Sense to get some work experience. I wanted to develop my skills and develop some inspiration for what I want to do after school. I’m in year ten in a mainstream school and will be doing most of my GCSEs next year.

Continue reading “As a visually impaired school pupil, Sense College was the perfect place to get my work experience”

Young people with sensory impairments exhibit sonic works of art

A young girl and woman hold hands as they touch and interact with a wooden interactive art piece

Over the past several months, Sense Arts has been working closely with six young people with sensory impairments and complex communication needs through a series of music making workshops.

These workshops were part of a project called ‘Music is a Vibration’,  which is an inclusive arts project that enabled the young people to co-produce their own musical compositions. The project put young people at the heart of several immersive environments in which they were able to create music and experience soundscapes. The workshops were led by artists Tom Peel and Justin Wiggan, assisted by Sense support worker and musician, Bamba Dia.

Continue reading “Young people with sensory impairments exhibit sonic works of art”

Video of deafblind football fan inspires people to think about sport and inclusivity

Two men touching hands over a green painted board.

World cup fever is upon us! It’s all over the TV, radio, social media, and is the topic of many of our conversations at the moment.

In amongst all the hype, one video in particular went viral over the weekend, just as Deafblind Awareness Week kicked off. The video shows football fan Carlos and his friends celebrating a goal in Brazil’s game against Costa Rica on Friday. What’s different about this video is that Carlos is deafblind and is experiencing the football through touch.

Continue reading “Video of deafblind football fan inspires people to think about sport and inclusivity”

My inspirational aunt is why I’m leaving a gift in my Will to Sense

Black and white photographs of a young woman in the 1940s working in a factory and holding her guide dog

I choose to support Sense in memory of my aunt Josie. Josie had meningitis in 1940, when she was just 12 years old, which left her deafblind. She was independent, strong-willed and a true inspiration to everyone who met her.

Continue reading “My inspirational aunt is why I’m leaving a gift in my Will to Sense”

Walk for Deafblind Awarenesss Week 2018

A crowd of people walking along a street wearing orange tshirts

Deafblind Awareness Week 2018 is almost upon us. From 24 – 30 June, hundreds of people will be raising awareness across England, by taking part in our Sense Walks. And we’re inviting you to join us.

Deafblind Awareness Week includes celebrating the birthday of world famous deafblind American author and activist, Helen Keller, who was born on the 27 June, 1880. Keller was instrumental in raising awareness of deafblindness among the public, helping them understand what life is like when you have both sight and hearing loss.

Continue reading “Walk for Deafblind Awarenesss Week 2018”

Success for Sensibility Festival

A woman touching a textured see-through piece of fabric

Sensibility was a three-day disability arts festival in Birmingham that showcased the contributions and connections to arts and creativity of sixty deafblind and disabled people. It brought together a diverse audience from all over the country, to celebrate and share a unique experience.

Continue reading “Success for Sensibility Festival”

Volunteering on a Sense holiday is a really rewarding experience

A smiling man with his arm around a young man at a picnic table outside a farm

After an accident left me with some mobility issues, I felt a strong desire to support people with disabilities. Since then I have worked and volunteered with adults and young people with physical and learning disabilities. Volunteering on a Sense Holiday was an incredible experience.

Continue reading “Volunteering on a Sense holiday is a really rewarding experience”

Who will care for my disabled son when I’m gone?

A woman sits with her son at the kitchen table. They're smiling. She rubs his head.

The decision to explore the provision of long term care for your loved one is not an easy one.

We had always said we’d look after our son Alex for as long as we could, and as long as there were support systems in place. But with dwindling resources in respite care, it’s becoming harder to plan for the future. Continue reading “Who will care for my disabled son when I’m gone?”