Sleigh bells weren’t the only chimes heard in December as the world was gearing up for the festive season. Down a colourful corridor in Coventry Hospital, one bell rang out the louder than most.
Four years ago, Jai was diagnosed with Alstrom Syndrome
which is one of the rarest genetic diseases in the world. Not only does it
affect your vision and hearing but also makes you susceptible to other
conditions such as diabetes. Since the diagnosis, Sense was there to support
Jai and Pam through all that was to come.
It’s been a busy year for Sense, and as 2019 draws to a close, it’s important to reflect on what’s been achieved over the last 12 months!
one left out of life
the beginning of the year, we launched our new strategy, No one left out of
life, with ambitious goals for the people we support.
what continues to be a challenging environment in all three of the areas Sense
operates in: Charity, Social Care and Retail, I am proud to say we have
continued to expand our services, meeting the needs of an even greater number
of people, without
compromising on our high standards. We are very proud of our record in
social care. It also means our campaigning work is more credible as it is
rooted in the views of those we support and their families, and from our
expertise as a service provider.
As the dust settles on another election campaign and we
return to comparative normality, I have been thinking about what I would do if
I was Boris Johnson today. I can’t deny
that Brexit will dominate much of the coming weeks but what about our domestic
policy, what else would I want to achieve and what would success look like?
Discussions on improving the rights and services for
disabled people was notable for its absence during the General Election
campaign. This just serves to exacerbate the feeling of exclusion and not being
valued by society. It goes without
saying that the priority for me would have to be taking urgent action to
redress the inequalities and injustice that disabled people face on a daily
basis. It’s a glaring injustice that needs to be addressed. I’m calling on Boris to put disability at the
heart of their government, enabling disabled people to live fulfilled and
This year I ran my first marathon and what a difficult choice it was. The decision to run it was tough considering I had not done much long-distance running before. Fundraising was fun but still a challenge as was, of course, the training. Rain, sun or snow I had to be out there putting in the miles. In fact, the easiest part of the whole thing was deciding which charity to run for.
that time again. In just over three weeks the nation will go to the polls. And
as parties have frantically prepared their manifestos and refined key messages,
the third sector has found itself in a familiar chaotic state. Complete
confusion about the Lobbying Act. Letters to write to all prospective
parliamentary candidates. Hustings to organise…
This week is National
Adults Safeguarding Week. The aim of the week is to create conversations
and spread awareness about keeping vulnerable adults safe from abuse.
Adult Safeguarding, as defined by the 2014 Care Act is “working
with adults with care and support needs to keep them safe from abuse or
neglect.” It is an important part of what many public services do, and a key
responsibility of local authorities.
Organisations take different approaches to implementing this into everyday support. We asked what safeguarding means to a selection of senior managers, as well as our Sense User Reference Group (SURG). SURG gives people living with complex disabilities the opportunity to share their views of Sense and our services.
In 2018 we all became worried about loneliness. It is not a new problem. But last year and thanks to the Jo Cox Commission, the Minister for Loneliness, the Campaign to End Loneliness, the disability sector working together, and countless other organisations, it has become an urgent one. We also have our first Loneliness Strategy. 2019 is the year in which we seek to tackle the loneliness epidemic.
Sense, Birmingham Botanical Gardens & artist Justin Wiggan have been working together on ‘Sensory Beings: Internal Garden’ funded by Grow Wild. Everything we do at Sense is inspired by the people we support. Sense Arts creates a more equal platform where everyone has the time and space to take part, in whatever way they want. Sensory Beings: Internal Garden is the next chapter of Sense Arts Inclusive Arts Strategy, ‘Space to be Different’.
Our sport & physical activity programme started in 2014 and has been growing ever since. We have worked with Sport England over the last five years supporting more people with complex needs to be active. This recent funding has come about following our work to date and our ambition to reach more people with complex disabilities who currently aren’t able to access opportunities due to a number of limitations with provision, society, and perception to name a few.
The Sense Awards are a highlight of the year for many of us, myself included, and this year’s event was no exception. Our annual awards, now in their 16th year, are about recognising and valuing the people around us and the difference they make, whether they are a staff member, volunteer, an individual we support or their family carer or sibling. It’s important that we take time out as an organisation to recognise everyone’s contribution and celebrate their successes.
year’s awards were very special again and below are just some of my personal