Ernie was diagnosed with Down’s syndrome and has been supported by Sense for a number of years, always with his brother Ted, for support by his side. During the lockdown, both brothers have managed to make the most of everything Sense has to offer. Ted and Ernie’s mum Helen, tells us all about the support they’ve all been receiving.
“Ted & Ernie were welcomed by Sense with open arms when they were babies, attending weekly stay and play sessions at the Woodside Centre in Bristol. There was music, messy play and lots of fun every week, a real highlight of the week for everyone! Over the years the boys have attended Summer play schemes at the centre, Christmas parties and trips in and around Bristol. We’ve had so many amazing memories and experiences along the way!
Prior to lockdown, Ernie has been attending weekly after school sessions at the Woodside centre. A really important step to independence and as a parent, the opportunity for Ernie to access an extra-curricular activity where his needs are met, and we know he is safe and happy (and having lots of fun of course)! He also attends Sense family days; there’s sensory storytelling, art and craft sessions and dance classes which he loves. Ernie has also been matched with a virtual buddy through Sense, the most wonderful young lady (Chiara); they catch up every week via Zoom and get to bake/dance/paint or whatever they choose; it’s been brilliant!
In more recent times, Ted has had a fantastic opportunity to participate in the Siblings and Young Carers programme. He had a brilliant weekend away at PGL camp (his first weekend away) when he was 7; he had the best time ever! Sports, kayaking, campfires and more. He made new friends and we knew he was in the safest of hands.
“Ted has never really been bothered about baking but has a real interest since taking part in the Sense sessions”Helen Conway
Ted is also now accessing virtual sessions with Sense, he’s attended boxing, wellbeing sessions, arts and crafts, film nights, baking and more! He really looks forward to the sessions and has grown in confidence as well as making new friendships; he even keeps in touch with some of the fellow siblings outside of the programme which is great. These sessions have been so important during the pandemic; we’re all so grateful. He’s learnt new skills and has a great time. It’s always an exciting time when the new timetable of events comes though, it’s always packed with fun activities and is a big part of Ted’s life!”
If you’d like to speak with us more about getting support, visit our Sense Connect page on our website for the referral form.